Online brain tumour support groups
Our brain tumour support groups offer a safe online space where you can connect with others who know what you’re going through.
Our Groups enable you to share experiences, find and give support and help you feel less isolated. Whether you're living with a brain tumour or you're caring for or supporting a loved one, you're welcome to become a member.
Join a group
We have four Facebook groups:
- one for anyone affected by a brain tumour diagnosis
- one for young adults aged 16-30 living with or beyond a brain tumour diagnosis
- one for parents who have a child under 18 living with a brain tumour
- one for carers.
The groups are moderated by members of our Support and Information Team and have a code of conduct for your protection. If you'd like to join a group, please read our code of conduct, then click on the relevant link below.
Before we approve request, we ask for a few details from you to make sure that everyone finds the right group for them and that we're creating tools and services that best meet the needs of our community.
- Request to join the general Facebook Group.
- Request to join the parent's Facebook Group.
- Request to join the carer's Facebook Group.
- Request to join the young adult's Facebook Group (for young adults living with a diagnosis).
We have a minimum age requirement of 16 years for joining our Facebook groups. If you're under 16, email us at firstname.lastname@example.org and our team will be in touch with more information on the support we can provide.
I was greeted with a group of people who just got it. I could vent when I was angry, share when I was sad and tearful, and this group was always there. It didn't seem to matter what time of day or night, there was almost always someone online happy to chat.
Five reasons to join a our Facebook groups
- Our members are welcoming, hugely supportive of each another and hold a wealth of experience and information that they are happy to share in the hope that they will make someone else's journey a little less overwhelming.
- You can access the group whenever you want and are very likely to find someone else on there at 2am who is also unable to sleep!
- Our lively and friendly community has thousands of members and, whilst mostly from the UK, our members can come from anywhere in the world meaning that if, for example, you have a rare tumour, the likelihood of finding someone with a similar tumour or experience is increased.
- You can share your treatment experiences with others being treated in different places and perhaps explore different options available.
- Nothing you post in the groups is shared on your personal profile or timeline, though the fact you are a member of the group is visible to other people.
If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
Support and Information Services
0808 800 0004 (free from landlines and mobiles)
Phone lines open Mon-Fri, 09:00-17:00
Research & Clinical Trials Information
You can also join our active online community - Join our online support groups.