BRIAN is an online app which has been developed by the Brain Tumour Charity to help people cope with a brain tumour. BRIAN will help you - and those supporting you – to understand how you are doing and to make better-informed decisions.
BRIAN has been designed for all kinds of people, whether you are living with a brain tumour, caring for someone who is, or you work in healthcare or research.
BRIAN allows you to record your entire brain tumour experience in one place - you can add symptoms, treatments, side effects, appointments and much more. You can also share your data with anyone you trust – such as family, carers and your healthcare team – enabling them to better understand your situation.
| Recently diagnosed? | Having treatment? | Lost someone? |
|---|---|---|
BRIAN's tools, like the Benefits Checker and Clinical Trials Finder, offer information that may be difficult to find. BRIAN's insights provide information about others on the same journey. |
BRIAN can help you keep track of treatments, appointments, medications, side effects and wellbeing. This information can be quickly and easily shared with healthcare professionals. |
You can contribute valuable historical information to BRIAN's database, by sharing details of treatments and quality of life. Questionnaires in BRIAN provide researchers with even more information.
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| For healthcare professionals | For researchers |
|---|---|
You can share your BRIAN information with healthcare professionals, carers or family members. The visualisations in BRIAN help to convey how things have been since the last appointment. |
BRIAN supports researchers by granting them access to anonymised user-entered patient outcome and quality of life data. BRIAN will provide cost-free access to data sets from national healthcare organisations. |
Here are just some of the features you'll find in BRIAN.
Keep track of treatments, appointments and medications.
Track quality of life, including symptoms and emotions.
See insights derived from national data sets and user input.
Help researchers and The Charity by completing questionnaires.
Keep track of benefits and assistance received.
Find clinical trials and track trial involvement.
Record information about tumour(s) and how they change.
Invite healthcare professionals or others to access your data.
Track side effects felt from medication or treatments.
