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Living with a brain tumour

A brain tumour diagnosis, whether it is you or a loved one who receives it, is devastating. It can be very difficult to accept and can change your life in many ways. It can have a significant impact on your social, physical, functional and emotional well-being.

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This section of our website aims to provide you with information to help and support you in dealing with this life-changing event in the best way possible - to help you understand what challenges might lay ahead, and to find ways of dealing with these challenges as effectively as possible - whether you have a brain tumour or are caring for someone with a brain tumour.

Get Support

We offer a wide range of services for everyone affected by a brain tumour.

View our support services

Side effects

Tips for coping with brain tumour side effects, which can impact your quality of life.

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Relationships

Learn how we can support you and your loved ones after a brain tumour diagnosis.

Find out more

Maintaining independence

Being diagnosed with a brain tumour can affect your ability to work, drive and travel.

Learn more

Finances and benefits

As a patient or carer affected by a brain tumour, you may be entitled to financial help.

Find out about benefits

Terminal diagnosis

See the support will be available to you and your family at your end of life and after you're gone.

See available support

My hair is part of my identity, so losing it really affected my confidence.

Read Emeline's story

It was mentioned that the radiotherapy might make me lose my hair, but not how much, as it’s different for everyone.

By session 17, I was half bald, with a ‘reverse monk’ hairstyle. I felt very self-conscious, so took back some control and shaved it all off.

There’s no quick fix to get your confidence back, but you can learn how to accessorise and style yourself. Treat yourself and find ways to make your new look seem purposeful. I bought lots of earrings: dangly, colourful, tasselled – as many colours and styles as I could find!

My friends were very supportive and, if I told them I was having a crisis of confidence, they’d build me back up.

I’ve had so many emotions, but I’ve had the chance to try new styles I wouldn’t have otherwise. Losing your hair will suck, there’s no denying it. But you aren’t alone and there are people you can talk to who understand what it’s like.

Just learn what works for you, trust your instincts and talk to people – that’s the best thing you can do for yourself.

Emeline Gilhooley, diagnosed with a grade 3 brain tumour in 2018 and whose hair has now grown back.

You can find more stories from our community, as well as tips, advice and peer-led support, in ourOnline Support Communities.

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The aim of The Brain Tumour Charity's Family Days is to provide a fun, relaxing, and supportive experience for families affected by a brain tumour. Our Family Days also provide the opportunity for parents and children to meet others experiencing similar difficulties and share their stories.
The aim of The Brain Tumour Charity's Family Days is to provide a fun, relaxing, and supportive experience for families affected by a brain tumour. Our Family Days also provide the opportunity for parents and children to meet others experiencing similar difficulties and share their stories.

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The aim of The Brain Tumour Charity's Family Days is to provide a fun, relaxing, and supportive experience for families affected by a brain tumour. Our Family Days also provide the opportunity for parents and children to meet others experiencing similar difficulties and share their stories.

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The aim of The Brain Tumour Charity's Family Days is to provide a fun, relaxing, and supportive experience for families affected by a brain tumour. Our Family Days also provide the opportunity for parents and children to meet others experiencing similar difficulties and share their stories.
The aim of The Brain Tumour Charity's Family Days is to provide a fun, relaxing, and supportive experience for families affected by a brain tumour. Our Family Days also provide the opportunity for parents and children to meet others experiencing similar difficulties and share their stories.